If you are tired of hearing about how you and your family need to bounce back again as 2021 (and 2022) perpetuates the same problems as 2020, you are not alone. One mother of a fifteen year-old boy with ADHD and dyslexia who hates virtual school and is barely passing his courses told me she is “sick and tired of hearing about resilience. I’m drained and he’s depressed. That’s our reality.” She’s experiencing pandemic burnout and is flooded with resilience fatigue: exhaustion from facing daily challenges with resourcefulness and strength that’s just not there. Sound familiar?
Resilience is the ability to rebound from difficulties. There’s a myth that resilience is about your character. It actually has as much, if not more, to do with your socioeconomic status, religious and ethnic background. Numerous obstacles such as financial stress, unemployment, bigotry and systemic racism demand resources beyond ‘resilience.’ Similarly, children and adults living with ADHD, persistent mental health issues or physical or learning disabilities struggle daily with challenges that demand effective coping strategies. When we offer platitudes about “digging deep” and “finding your resilience,” we may inadvertently dismiss the validity of these struggles.
Resilience fatigue comes from being depleted mentally, physically and emotionally. It is REAL and particularly now. You, your neurodiverse kids, your extended family and our global community have been stressed and stretched by the pandemic beyond our capacities for months. COVID restrictions, indoor living and social isolation have worn us all down. It’s hard to envision bouncing back to something that we can’t see. Where is the light at the end of this tunnel anyway? For kids with ADHD who live with NOW/NOT NOW brains, seeing the future and focusing on what’s coming next is already tough. If the NOW is unpleasant (whether that’s another day of virtual school, reading Hamlet or cleaning the cat’s litter box), it doesn’t matter how great whatever is happening later may be. There’s just not enough dopamine in their brains to sustain interest and action to get through the unbearable present. Instructing them to buckle up and ride this pandemic out for a distant tomorrow seems really impossible when they’re wiped out. 
As parents, your tank is likely on ‘empty’ too. Sadly, it seems like many parents I talk to feel ashamed of their depletion. You go on social media and see how other mothers or fathers manage to be productive, create and maintain activities for their kids, stay fit and prepare gorgeous meals. But, you can’t compare your insides to other people’s outsides. Whatever people are posting is what they want you to believe. Underneath their smiles lie similar struggles to your own.
The antidote to resilience fatigue is compassion–for yourself and for your kids. When people feel resilience fatigue, they’re not only exhausted but they are judging themselves for what they aren’t doing. This is especially true for neurodivergent kids with ADHD, LD or ASD who find virtual school difficult and aren’t doing well. Their current challenges reinforce whatever negative self-talk they already engage in. So, we’ve got to pivot to paying more attention to what is going well enough, adjusting expectations to meet the reality of pandemic life and reducing negative expectations for failure. Follow these steps to regroup and rekindle the spark of strength that you all possess:
Stop judging yourself and your kids for being the way you are. Resist comparisons with other families and students. When you accept how you and your kids are actually doing–the good, the bad and the ugly, you move from the draining, self-defeating statements of ‘I should’ and live with the soothing balm of refueling statements of ‘I can.’ Coping with resilience fatigue starts with acceptance. Ask your son or daughter with ADHD what is one ‘should’ they tell themselves? How can you work together to transform this statement into a ‘can’?
Resilience fatigue in the midst of this pandemic has very little to individual limitations and everything to do with how the government and health care system let us down. This burnout is a natural process related to the grief, hopelessness and helplessness we all have felt at some time during this past traumatic year. Cut yourself some slack and revamp your expectations for your neurodiverse kids and your family. At your weekly family meeting or during dinner, ask everyone to share one hope for themselves in the coming week. Explore what type of support they may need to bring it to fruition. Then, next week, check in about this and identify another hope. By talking about hopes instead of expectations, there’s a greater chance of a small success. Hope can shift pessimism to positivity.
Where happiness is fleeting, contentment reflects ongoing satisfaction. We can’t snap our fingers and erase the COVID world, but we can create a few rituals that make us smile. Have breakfast for dinner once a week. Make popcorn and have a mandatory family movie night. Visit a local place you’ve never been or one that you really love. Host a short zoom dance party in your living room and let each family member pick a song. Ask your friends for ideas of things they’ve been doing to break up the monotony.
Look back as a family on what has helped you thus far get through the pandemic. Help your kids be as specific as possible. They may need some nudging as recalling positive stuff is tough for many folks, particularly those with ADHD. Write down each idea on a large piece of paper and put it in the kitchen or tv room for everyone to see. When you examine what tools fostered previous resilience, you’ll see the drops of water needed to refill your dry well right in front of you. Pick one to practice for a week, otherwise it might overwhelm you and be self-defeating. One of my favorite mentors says: “When you get to the end of your rope, make a knot and hold on.” Holding on, resting there, resetting and regrouping will help your family cope with resilience fatigue. These practices will help rebuild your collective and personal strengths, too. 
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Teens and young adults are making many, many adjustments recently. Not only are they unable to see their friends and connect in familiar surrounding, but they are also facing the uncertainty of what comes next. If they are still enrolled in college or high school – virtually, in-person or in a hybrid version – they are leaving behind the familiar structure of home, school and community. Yearning for adulthood, while longed for, can be overwhelming. Those with ADHD are more than likely struggling in social distancing. College is not a college experience. The activities, in person classrooms, clubs, teams, fraternities, etc are gone. The same applies to high school students too. Pods need to be formed, and strictly adhered to versus bumping into friends at the cafeteria. It’s a huge shift in many areas simultaneously.
It’s important that parents and loved ones acknowledge the enormity of this transition and don’t compare their own experiences with those of their children. Things have changed a lot and many young adults struggle under the burden of huge financial debt, social isolation, a high cost of living or the disappointment of living at home, and a tight job market. Staying compassionate, offering to assist them and collaborate on tasks and being available to talk through emotions related to this change is most helpful. Don’t solve issues. Instead, offer your suggestions and avoid getting hurt if they aren’t taken. Young adults often like to figure things out for themselves, which means trial-and-error learning. Sometimes the best support you can give is managing your own frustrations, sharing your feelings without blame or guilt and validating their successes.
Having a daily routine offers structure and freedom. It’s critical to set aside a specific period of time for attending classes, school work and applying to jobs each day so these activity has boundaries. These daily activities can become tedious and deflating, particularly in a pandemic. They can spread into all aspects of your life as the list of things you should be doing keeps growing. Eventually, avoidance accompanies discouragement and overwhelm. Talk with your son or daughter about marking off a few hours each day (preferably in the morning to get it over with) for necessary activities. This will assist them in feeling accomplished each day. It will also help them feel competent because they’ve done something in a time frame that they laid out. Then, they can do whatever they want. Help young adults limit screen time. In doing so, advocate for doing other things that interest them and make them feel good. Exercise, time with friends, shopping and cooking–these are all activities that contribute to healthy living. Teach them how to shop, balance their bank account, make a budget and understand their health/car insurances. These skills are not necessarily second-nature, and it’s very common to need extra support in learning them. Keep an eye on your child. If you notice changes, don’t hesitate to reach out to a mental health professional. Even very “strong” people are struggling in this pandemic.
Do you ever notice how your heart races in similar ways when you’re anxious and when you’re excited? The energy courses through your body and brain, and you feel a type of exhilaration. Of course, it’s more negative for anxiety and more positive for excitement. In both cases, however, our adrenaline is activated because anxiety and excitement really are like two sides of the same coin. Managing both types of these intense, overwhelming reactions is especially taxing for kids with ADHD due to their challenges with impulse control and emotional regulation. How can you help transform anxiety in kids with ADHD into eager anticipation?
Negative expectancy has helped us survive for centuries, whether it’s avoiding tigers in the jungle or mastering the art of riding a bicycle. We make mistakes or encounter challenges and learn to adapt, accommodate and overcome. This ability to persist and bounce back is the antidote to anxiety and the foundation of excitement. Anxiety weakens confidence and courage by feeding doubt. Kids don’t believe that things will work out. Based on previous struggles, they expect the worst.
Kids are excited for things they look forward to, believe they will enjoy or think they can accomplish. Nervousness can be a precursor to excitement: once a child or teen has learned the skill associated with a new task or situation, they shift from insecurity to anticipation.
With a history of impulsive or distracted behaviors, school difficulties and social challenges, many of your sons and daughters are afraid to hold a positive outlook when faced with something unexpected or different. They’re insecure that they possess the coping skills to successfully meet the novel demands they encounter. They need you to remind them of previous situations when they took a chance, stuck with something hard and succeeded. Working memory challenges for the ADHD brain make this recall particularly difficult in the face of strong negative emotions.
Sometimes it’s a simple act of changing the language that we use to describe our experiences that encourages an alternative perspective. This may sound trite, but our narratives really frame our actions and outlooks. We want to help kids with ADHD shift away from anxiety that globalizes fear and uncertainty. Instead, we want to move them towards a framework of improving inadequate skills. This fosters a growth mindset and helps them pivot towards excitement.
What would it be like to assist your child in noticing the energy they are feeling when they feel nervous or worried? Observe what you see happening with neutral statements like “I see that your voice is getting louder and your face is flushed. Tell me about your concerns.” In addition, ask them about the flip side of the anxiety: “What would it be like if you were excited instead of afraid? What is something you could do differently or what other options can we discuss that might make this situation turn out better than expected?” Every small win, every small shift to a positive perception, is a success.
As we embrace 2021, following a year of many challenges and much anxiety, I encourage you to commit your family to take a small step towards a new perspective. When someone expresses worry about something where a pivot is possible, investigate the energy, name it and see what happens. Standing at this crossroads, travel down the path of excitement for an alternative.
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This article has been accepted for publication in Smith College Studies in Social Work, Volume 91, 2021 – Issue 1, published by Taylor & Francis. Click the image below to read the article.
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